The first step toward change is awareness. The second step is acceptance.
- Nathaniel Branden
|Lupus Walk May 2014|
May is Lupus Awareness Month! Yay for awareness! I haven't done as much as I wanted to on this blog with Lupus Awareness Month, but something is better than nothing. So, I figured I'd start with National Put on Purple Day, which is May 15th. And, in case you can't tell, putting on purple is easy and fun for me to do since clearly, I love the color purple. (No pun intended Lupe)
For those of you that are unsure, or unclear as to why I "celebrate" put on purple day and Lupus Awareness Month, please be advised of the following:
1. I have Lupus. (shocker)
2. My Tia Morena passed away from complications with her Lupus
3. My Tia Daveyba also lives with Lupus
4. Lupus sucks and we need to raise awareness.
Although I started this blog many moons ago to cope with what Scleroderma was doing to my body and my life, over the last few years, my body has also decided that it wants to take on the challenge of living with Lupus...so..here I am. Raising awareness not just for sclero, but for Lupus as well. I am a woman of many talents.
|Me & My Boo at the Lupus Walk May 2014|
Today, I just want to share 15 fast facts about Lupus that I think you need to know to put this all in perspective: *For more facts visit Lupus Foundation of America- All information below is from the Lupus Foundation of America
|Mami and Me @ Lupus Walk May 2014|
I am one of those 1.5 million, and there is probably at least one other person in your circle of family and friends that is also living with this disease and you just don't know it...and maybe they don't know it yet either.
It's not an easy disease to live with and manage. It's always surprising me. I've often said that I feel it's worse than scleroderma- only because sclero never attacked my internal organs and that's all Lupus seems to want to do. I know both are devastating in their own ways, and I am trying to learn to just be an observer, to live with these illnesses with non-judgement but I am a work in progress.
Lupus has taught me to be patient with myself and others. To take nothing for granted and to live with purpose. To acknowledge that my body and my mind has limitations and to be ok with that. And to treat others kindly because you never know what secret battles they are facing.
I also know, that I inted to continue spreading awareness, sharing my story so others feel less alone, and to continue tackling all of it with humor, passion and grace.
If you put on purple on May 15th, please snap a selfie and share it with me here or on Facebook/Twitter!!!
(Next on the blog...My Lupus Journey and The Spoon Theory..stay tuned!)