Here are a few pics of my journey. (Please note, some images are graphic in content, peruse at your own risk)

Before & After

This was in 2006 shortly before diagnoses. My upper lip was still full and I was at a healthy weight. 
2010 on Prednisone, upper lip thinned out, weakened eyesight due to meds

Prednisone "Moon Face"

Fingertip Progression/Amputation

The images below are graphic in content

It starts with a scratch that won't heal                       And then it becomes infected...and spreads

It begins to eat away at your flesh and causes gangrene

Until the pain is so bad and there's nothing more you can do but amputate  

Hospital Stays & Other Shenanigans

They can never find a vein!

Brain scan on my honeymoon thanks to migraine.

Flolan Treatment- worst 5 days ever..this one hurt!

All the places they poked me for Flolan Treatment

My dog Whiskey, he's just as tired as I am sometimes!

My boo, trying to rest during one of my hospital stays
That's LOVE!

My biggest supporters, Mom, Dad and Lupe


  1. Thank you for sharing your journey it is very helpful!

  2. Thank you for sharing your journey it is very helpful!

  3. Thank you! I have been suffering with Raynaud's since 1996. The doctor's could not give me a diagnosis. Maybe lupus maybe this or maybe that. The pulmonologist finally diagnosed me with Scleroderma yesterday. I have felt so horrible for years, but reading your story I realize I am really lucky. It is slowly progressing. Again thank you for sharing your journey. I will continue to follow you and keep you in my prayers.