tag:blogger.com,1999:blog-7259138986794710605.post2522995587595100921..comments2023-12-18T01:04:40.893-08:00Comments on Chronic Brevity: Something To Live ForAnonymoushttp://www.blogger.com/profile/12964980763287416371noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7259138986794710605.post-32124782017546035312013-03-13T21:42:01.566-07:002013-03-13T21:42:01.566-07:00Danea, Thanks for your reply. I live in TX but hop...Danea, Thanks for your reply. I live in TX but hope to do great things with the GEIA network once it gets off the ground. I know what it is like to live through the first stages of diagnosis. It is not easy and it seems that once we have a diagnosis symptoms start to appear and things get really hard for us. Know that I am happy to help and share any information that I have that might be helpful. Try and connect with the local scleroderma chapter in your area and collect as much information as you can. People are often scared to see pictures, get information and learn all they can because they are afraid, but the more you know, the better treatment you can get and the better questions you can ask your doctor on your visits. We have to be advocate for ourselves and becoming knowledgeable is the best way to do that. I wish you the best on this scary and life altering journey, but do know that living a good and wonderful life despite the flare ups and pain IS possible..I am living proof of that. Anonymoushttps://www.blogger.com/profile/12964980763287416371noreply@blogger.comtag:blogger.com,1999:blog-7259138986794710605.post-71907989524879565182013-03-11T17:21:09.796-07:002013-03-11T17:21:09.796-07:00Thanks for your words of encouragement. I have be...Thanks for your words of encouragement. I have been diagnosed with scleroderma in the past 3 mos. It is a scary, but eye opening world for me and my family. What part of the country are you in? The GEIA network sounds great. I live in St. Pete, Florida. <br />Blessings to you!<br />Daneachefdaneahttps://www.blogger.com/profile/13623845502986069135noreply@blogger.com